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Fibromyalgia Support Group for Surrey and Sussex
Hello Everyone, My name is Nichola. I am
44 years old and I suffer with Fibromyalgia Syndrome.
Fibromyalgia Syndrome is a painful
debilitating condition. There are hundreds of stories from sufferers all
over the world and rising. We suffer from many problems associated with
Fibromyalgia physically but mentally. There has been a lot of research
to find out what causes this terrible condition and how to cure it.
Sadly it is not curable.
Also, any age group can suffer from it.
But there are still many people that have no idea what it is. I have
been a member of our support group since our founder started it in 2003
in Horsham then we opened Worthing Local Support Group. Due to the
credit crunch and lack of volunteers our precious support group had to
close. Many have missed it and we need it back. We need support. I
have spoken to some of the members about starting it up again.
UPDATE from Nichola Bond: May 2010
Hi, I am the organiser of the
Fibromyalgia Syndrome Support group in Worthing and surrounding area,
one of our members son ran the London Marathon on Sunday for our group,
we are apart of the Sussex & Surry Fibro Charity Support group. Fibro is
a debilitating condition wit no cure, as it is syndrome we suffer with
a number of health issues for example Thyroid problems, IBS, Sleep
problems, exhaustion, migraines, forgetfulness, brain frog and close
down. we suffer with a lot of pain in our muscles and the nerves are
damaged. The messages from the nerves and muscles do not get to
the right place in the brain.
We meet every third Tuesday of the month at:
Ferring Baptist Church Hall
Greystoke Road
Ferring
W Sussex
BN12 5JL
Please call me for any information on
07796653477 or and email me
youadme1@sky.com
This is a follow up on the London
Marathon for our Worthing & surrounding area for Fibromyalgia Syndrome
support Group.
Dave ran with an injury to his leg in 4 hours & 30 minutes. Please say a
big thank you to Dave Chidley.
On 12th May it is World Fibromyalgia
awareness day and our group has a coffee morning on the 12th from
10.30am to 12.30pm come along and meet others in a relaxed atmosphere.
please call me on 07796653477 or and email:
youandme1@sky.com for directions.
We need ideas to let people know that there is a support group here, do
you have any to suggest?
As we are a new group & are limited with funds. We are looking for
companies to take us on as there charity. We are also looking for
donations for various items for our raffle and auctions in the future.
If we can find a printing company willing to donate a lot of leaflets so
the can go into local newspapers so we can reach as many house holds as
possible.
Please contact me on 07796653477 or & email:
youandme1@skky.com
From Nichola Bond
Organiser of Fibromyalgia Support group for Worthing & surrounding area.
Author of our monthly news letter.
Monthly Meetings in Ferring:
We have secured a place for us to have our monthly meetings. At
Ferring Baptist Church, Greystoke Road, Ferring, West Sussex, BN12 5JL
Every 3rd Tuesday of each month beginning in January 2010, first meeting
date will be Tuesday 19th January 2010.
We are having a Xmas lunch on the 21st December if anyone is interested
in coming please contact Debbie on 07590 993928. Please hurry as the
place needs to have a pre-order.
The structure of the meeting will be different from the old one. We will
have Fun and Laughter with News, Library, Competition, Mini Holistic
Treatments available at each meeting & lots more for all to enjoy. We as
an organisation have a Help Line in place for News, where to go for
help, how to go about getting the right treatment, support benefit info,
just for someone to listen to you.
Our founder has won many awards for her
efforts and we have been a registered charity since 2005. We can't let
all of her help and many of her volunteers' help go to waste.
Every sufferer should know that there is
help for them, they are not alone. |
